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The House Committee on Energy and Commerce
Subcommittee on Oversight and Investigations
June 3, 2003
10:00 AM
2322 Rayburn House Office Building
I want to thank the Energy and Commerce Committee for giving me the
opportunity to testify on the subject of "Assessing Initiatives to Increase
Organ Donations." The subject of increasing organ donations is very close
to my heart, and I feel very passionate about doing something to improve it.
While years of deliberations have taken place, 16 patients die every day waiting
for available organs that our present system fails to have donated. In their
names, we should act now to correct this tragic failure of our system.
The key of our proposal is to shift the decision to the donor (Donor
Authorization), as the previous speakers have proposed. Having been on the Board
of the second largest donor hospital of deceased organs in the country and still
missing a large number of possible donors, we became aware that when the
patient's desires are known, almost always the organ donation follows. In the
best American tradition, it is right that each individual make provisions to
decide when they are able to participate in the decision of what is to be done
with their organs in the event of brain death. This notion has finally taken
hold in the transplant communities around the country and is now favored by many
professional and family associations.
To be successful and access the 50% of the donor candidates that we are
missing now, it will require the massive enrollment of millions of citizens.
Educational campaigns, advertisements, enrollment drives, and all the methods
tried up to now have yielded less than 40% of the population signing, where
available, on the back of driver's licenses or donor cards, and proportionally
even less people joining potential donor organizations.
For these reasons and based upon "Project Donor" of Gene Epstein
and Al Boessmann, we propose to offer a $10,000 free term insurance-like benefit
or a similar tax credit only to induce the individuals to sign the witnessed
document when offered with the tax return form or driver's license application.
These two activities reach almost 100% of the USA population at one time or
another in their life. Why $10,000? Because it is an amount significant enough
to make the individuals focus on the document offered and the designation of the
after-death beneficiary of their generosity.
To address the right concerns of minorities that they would not be given
adequate terminal care if an insurance or tax credit exists, this document can
be accessed only when the patient has been declared brain dead and the family
has been notified.
Each kidney transplanted alone saves between $200,000 and $400,000 to the
insurers paying to keep these patients alive on the waiting list. Medicare pays
60% of these bills.
This proposal respects the autonomy of the individual, has been accepted by
many diverse religious and ethical organizations, addresses the concern of
minorities about their possible terminal care, empowers the poorer members of
society to bequeath to their families the societal recognition of their
generosity, and it makes economical sense, saving billions of dollars to the
present payers.
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